Charity registration number 1138491

Support and Information for families affected by chILD. Taking each breath as it comes.

Educational Booklet

BookletFirst published in July 2011, this guide is for families and carers affected with chILD. 

Based on the US version ‘Get up and go with chILD’, it has been updated with UK information and terminology. We are proud to have had the booklet overseen and approved by the following medical professionals:

Professor Andrew Bush
Professor of Paediatric Respirology, Imperial College, London, UK
Consultant Paediatric Chest Physician, Royal Brompton Hospital

Dr Steve Cunningham
Consultant Respiratory Paediatrician, Royal Hospital for Sick Children. Edinburgh, UK
Chair for British Paediatric Orphan Lung Disease Registry (BPOLD)

Dr Warren Levine
Child and Adolescent Psychiatrist, Child and Adolescent Mental Health Services, Wirral, UK

To request a copy, please email info@childlungfoundation.org
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Medical Information