www.childfoundation.us
Our ‘International Arm’ and inspiration behind the UK group.
http://health.groups.yahoo.com/group/chILDparentssupport/join
An International parent led chILD support group
www.bpold.co.uk
The registry site for British Paediatric Orphan Lung Diseases. Please encourage your clinician to register your child with them.
www.european-lung-foundation.org
The European Lung Foundation (ELF) works in partnership with the European Respiratory Society (ERS) to provide information the lung disease patients across Europe.
www.breathtakers.co.uk
Charity supporting OB (Bronchiolitis Obliterans) families and sufferers.
www.lunguk.org
Site for the British Lung Foundation
www.cafamily.org.uk
A UK charity for families with disabled children. They offer information on specific conditions and rare disorders.
www.direct.gov.uk
Government website for information on entitlements and benefits
www.uktransplant.org.uk
Official site for organ donations and information on organ transplants
A national charity of patient organisations, with a membership of over 140 charities supporting all those affected by genetic disorders.
Rare Disease UK (RDUK) is the national alliance for people with rare diseases and all who support them.
www.breatheon.org.uk
A charity supporting children and their families on long term oxygen.
Charity for patients on intravenous or nasogastric nutrition therapy. Click on Half PINNT for younger feeders.
Please contact us if there are any other website you feel are beneficial