Please be aware that if you read through this page, it may invoke feelings of fear or pain. This page is to give a voice to the families who have lost their child or for those who may be close to or experiencing grief and require information. This section does not replace professional advice – please speak to your GP or other healthcare professional if you are affected by bereavement.  

Loss of a child is a devastating event. Unfortunately, some chILD diseases have an increased risk of mortality.

Please find below some excellent organisations with resources to help you through this difficult time. The resources on these sites include information on every aspect of dealing with bereavement from emotions to practicalities. If you are feeling overwhelmed and require help navigating through this resources please contact us and we would be happy to help.